My family is together for a few hours!!

Yesterday, we went to the clinic (as outpatients, yay!!) and found that the treatment plan for the slow-responding leukemia has a treatment that takes 6 hours to infuse. This meant that, instead of being in the clinic for 2 hours, we were there for 8, and I didn't get to take the baby and go relax at my mother-in-law's house. :(


The nurses were great, making sure that we had everything we needed (because who packs for 8 hours of entertainment for a baby when only 2 hours are expected?!) and they felt great pity for us. The pity was because yesterday was so long, but we also knew we'd have to come back today for another 6-hour treatment.


Even though we had only a few hours together, Andy still came over, driving 3 hours to get here, and he has to leave this afternoon since he's working tomorrow. Those few hours last night were bliss, even though I was exhausted.


So, the baby has a port. A port is kind of like a semi-permanent IV line that goes just about directly to the heart. With the port, treatments and IVs are much easier to access the patient than trying to poke them each time for an IV. Because the port is so close to the heart, we have to be super, extra, incredibly careful about making sure that the site is clean and covered well when it is accessed (ready for an IV, which it has to be until next week since I'm doing the IV antibiotics).


Anyway, I brought the baby in for labwork yesterday morning (remember the visit that was supposed to be 2 hours??) and asked the nurse why there was a blister-like thing on the skin right near the port. Blisters would not be good. The nurse lifted up the baby's shirt just a little more and said, "Isn't that the baby's nipple?" She sounded kind of confused, but we both laughed and agreed that I'm not getting enough rest. Next week will be better when the antibiotics are done...and now I'll remember where the nipples are located. :)


Back to Christmas, we were blessed by so many with acts of service and gifts. Everyone was truly spoiled. Thank you. I really was not able to go out and buy gifts and nothing online looked good enough for me to buy. Although good enough wouldn't be the right term. I just didn't have the energy to shop much online either.

Oh, and there is now an officially bald head in our family. :) Wish I could post pictures with the smiling face that goes with the fearless, hairless head.

The next post will be of all the Christmas pictures in our room.

Merry Christmas!